Tag Archives: MS

Not Just a Cruise Contest

Not Just A Cruise

I came home from work one day and mom said, “We are going on a cruise. I entered us in a contest to go on a caregiver cruise.” I laughed, and said, “Great,” and went into the other room. Later she told me that I needed to go online and vote…that is when I realized what had happened. She was so excited, she said, “If I win this contest, I can do something for you.” I said, “Mommy, the chances of you winning are almost impossible.”

She looked at me so straight and said, “Nothing is impossible. I have Alzheimer’s. The doctors told us a year or so ago that by now I wouldn’t know anyone, and I am not perfect, but I am not gone yet. My mind still works on some days. And you have MS, your doctors told you if you continued to care for me at home that you would not be walking now, and you are. Nothing is impossible…sometimes, when you want, and hope, and dream and pray, and get your family and friends involved in your goal it works…nothing is impossible and you and me are proof”

So, I voted for my first time for the cruise. That was a couple of weeks ago. Since signing up for this contest mom has only had a couple of Alzheimer’s days. Her days are full of planning for a cruise, seeing the ocean for the first time…putting her toes in the sand. She tells me that she thinks the contest is good for her Alzheimer’s. If we don’t win…she says she will not be sad, because some other caregiver is getting a vacation.

This contest is over on September 15th…mom thinks that is a sign, because that is her birthday. IF we don’t win, it will be OK, because being in this contest has done more good for her, and given her something, a goal, and oh, the friends she has made, and the notes of encouragement she has received.  Yes, this has been more than a contest, this has been something for an old woman to try and give her daughter, a gift…something for both of them…to share…its not just a cruise. To her, it’s a goal to keep her Alzheimer’s away for a few days.

So, if we win or not, I am happy for what this contest has given her…and feel so lucky that she is still thinking of me first..she is doing this for me…how many daughters can say that their mommies still put them first? I win no matter what…I have her.

Editor’s note: You can vote for Barbara at the Caregiver Cruise Giveaway Contest. No registration is required. Just click the “vote” button. You can vote once per day until September 15. And, we hope you do. In the words of some mutual friends,  at the Dear Anna Olson project, “They have a real shot at winning this much deserved cruise. PLEASE, PLEASE VOTE for these beautiful women EVERY DAY until September 15th. Barbie is almost 90 years old, has Alzheimer’s, and needs constant care. Her daughter Missy suffers from MS, is often hospitalized, yet cares for her mother in spite of her own illness, fatigue, falls and pain. They have lived selfless lives – caring for others even while suffering these terrible diseases. Please help Barbie see the ocean for the first time, and give Missy a much needed and deserved vacation.”

Don’t Leave Me

This morning when I got mom up from bed she looked at me and said, “Oh, Sunshine, I sure have missed you. I am so happy to see you.” She giggled and while I was dressing her she said, “Yesterday the girl that was here taking care of me was wearing your cologne. She smelled…

And Then There’s the Money

And Then There’s the Money

Today Missy and I went to look at a new nursing facility. It is close to our home. Missy has so many medical bills and  she hasn’t worked for the last few years because she is taking care of me. We would of been OK but Missy’s MS drugs are over 3500.00 a month, her…

The Gift in Room 3 | Love Your Nursing Life | RN Bobbi McCarthy

Standing in the middle of the nurse’s station, I faxed a chart to Spring Harbor for our psych patient in room 11 and I watched the patient in room 3. Her twisted body was lying on the stretcher in a semi-sitting position. She was covered in a blanket and her feet were hanging out, uncovered.…

Nurse Talk Joins the Walk for A Cure for Multiple Sclerosis

Nurse Talk joined the team Walk or Grow Wings last Saturday in Santa Rosa, California to walk for a cure for MS. Inspired by the people in our lives with Multiple Sclerosis, the team raised over $9000 under the enthusiastic and able leadership of Karen Krueger. Thank you to everyone who donated, walked or volunteered.…

Stay Tuned for our Regularly Scheduled Programming

Stay Tuned for our Regularly Scheduled Programming

Sweetheart of the Nurse Talk staff, Austyn Leigh with team captain Karen Krueger

Nurse Talk joined the team Walk or Grow Wings last Saturday in Santa Rosa, California to walk for a cure for MS. Inspired by the people in our lives with Multiple Sclerosis, the team raised over $9000! Read more…

We have lots of great topics and discussions going on on our blog and Facebook pages. Stroke patient, Joyce Hoffman has been telling it like it is from the patient’s perspective. Do you know how your patients see you or what a lasting difference your care can make?

And, we’ve got current events from National Nurses United. Nurses, Robin Hood and the band of merry women and men, and scores of friends are strapping on their boots and preparing to head to Chicago for a protest Friday, May 18 during the Staff Nurse Assembly.

Must See Video: Our resident comedian Lynn Ruth Miller as she wows the judges (all but one?) on Britain’s Got Talent. See it here.

Due to the grave illness of host Casey’s father we were unable to tape our show this week. Please hang with us while we give you one more rerun. We thank and appreciate each and every one of our listeners, friends sponsors and others for making Nurse Talk possible. WE WILL be back next week with current issues, our fantastic new co-host Shayne Mason, and some wild and crazy entertainment.

ON this week’s Best of Nurse Talk Casey and Dan chat with Boston RN Karen Higgins. Karen is past president of Massachusetts Nurses Association and one of three co-presidents for National Nurses United. Karen shares her views on the continuing need for single payer health care in our country, the urgency regarding nurse-patient ratios and other important issues that affect all of us.

AND some great advice about taking care of your parents or other elderly loved ones. Kira Reginato joins us. Kira is the president of Living Ideas for Elders and is the host of her own radio show on KSRO, The Elder Care Show in Santa Rosa, California.

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RN Dorothy Ahmad on the NNU in Chicago and Jennifer Gainza on Multiple Sclerosis | January 21-22, 2012 | Show 433

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Joining Casey (Dan was excused to go to Chuck E. Cheese with seven 8-year olds) is RN Dorothy Ahmad. Dorothy is a CCU nurse at Stroger Hospital in Chicago. Recently registered nurses at Jackson Park Hospital and Medical Center on Chicago’s South Side voted by 85 percent to join National Nurses United, the nation’s largest…

Mary Ellen. South Chicago. Pizza Parlor. Multiple Sclerosis.

Mary Ellen. South Chicago. Pizza Parlor. Multiple Sclerosis.

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Photo: Nurses from Chicago’s landslide vote to join NNU

Well, this week we continue with our little walk down memory lane. We’ll hear from a caller named Mary Ellen who by the end of the call was not very happy with us. She recently sent us an email telling us her legs still hurt and we are crackpots!

For more where this came from check out our Comedy Pharm at nursetalksite.com.

Joining Casey (Dan was excused to go to Chuck E. Cheese with seven 8-year olds) is RN Dorothy Ahmad. Dorothy is a CCU nurse at Stroger Hospital in Chicago. Recently registered nurses at Jackson Park Hospital and Medical Center on Chicago’s South Side voted by 85 percent to join National Nurses United, the nation’s largest union and professional association of RNs. The Jackson Park RNs voted 94 to 16 to join NNU.

Casey then visits with Jennifer Gainza, the communications director for the Northern California chapter of the Multiple Sclerosis Society. We asked Jennifer to come on the show and talk with us about MS, the signs the symptoms and current treatments.

We were recently prompted to inquire about Multiple Sclerosis when our Nurse Talk web producer Tonia McCallum’s 20-year-old niece Austyn was diagnosed. Nurse Talk is sponsoring her team. Read more…

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