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Good Days and Bad | Alzheimer’s in the First Person | Melissa Vaughan
“Going to bed now, it has been a good day..today Missy and I talked and talked all day, we said things that I want to tell her, I am so afraid that one day I will go to sleep and wake up and have Alzheimer’s and never come back…sometimes the words that I want to say will not come out. I have to work fast, I don’t know how much longer I have as the real me…” –Barbara Taylor Vaughan
Somebody asked me this week how my mom was…I don’t know how to answer that. She has good days and bad…that’s all I can think to say. Today was a good day, she had fun, she talked and talked and talked, she ate fresh fruit salad till I thought she would explode. She asked me if I would tell her I forgave her, and if I would tell her she was a good mommy, she said she needed to hear that one more time. I told her, and I wrote it on a piece of paper.
Later I went in her room and she had folded the paper and pinned it to her shirt, she said she wanted to be able to hold and read it whenever she wants. She remembered how she used to kiss the palm of my hand so I could put it to my face when I was scared, so all day she would kiss the palm of my hand and have me kiss hers. Tonight as I was putting her to bed, she said her prayers, and had both of her hands cupping her face…somebody asked me how mom was this week…how do I answer that?
___________________________________About the Author: Melissa Vaughan is caring for her mother, Barbara Taylor Vaughan, contributor of the Nurse Talk column, Alzheimer's in the First Person, a journey through the disease. Melissa worked for an orthopedic surgeon for over 30 years, as a CMA and then LPN. On her way to her RN degree, Melissa dropped out to take care of Barbara after brain surgery. She eventually obtained a paralegal certification and worked reviewing records for medical malpractice cases. She retired 4 years ago due to Multiple Sclerosis and to care for her mom at home. We love them and thank them for their humanity and generosity of spirit.
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Alzheimer’s in the First Person
Barbara Taylor Vaughan is 90 and in the early stages of Alzheimer's. Barbara and Melissa Vaughan are putting a face on the disease by chronicling Barbara's illness. Melissa, living with Multiple Sclerosis, is Barbara's daughter and caregiver.
They hope educating others will inspire them to volunteer to help ease the suffering of those with the disease, thier families and caregivers. Barbara and Melissa's relationship, compassion and humor are inspirational.
We love them and thank them for their humanity and generosity of spirit.
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