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  • Who Will Speak For You? | Barbara Taylor Vaughan

    Barbara Taylor Vaughan April 4, 2012
    Holding hands

    Photo credit: Julia Freeman-Woolpert

    I visited a friend of mine today at the hospital…healthcare…damn, I hate the word.

    He is 91 dying of cancer, but alert, and just as charming as ever. The doctor came in while we were there and told him of a surgery they were going to do, to make him better. My friend cried and said he wanted no surgery, he just wanted to go home and be comfortable. Missy told the doctor that we were not family and that family needed to be present to talk about this surgery. The doctor told Missy they had been notified and surgery was scheduled. Missy called his son and told him of his fathers wish. The son said surgery was scheduled for tomorrow.

    Missy called a psychologist to come in and interview my friend, who called the man’s son. My friend is going home, no surgery, and his son came and hugged me, and apologized. He told Missy he was sorry. My friend winked at me, and squeezed Missy’s hand. He is happy to go home or to hospice to die. He is ready.

    Healthcare…make sure you have someone to speak for you. Make sure you have a real person not just a piece of paper. We all have rights. We are home now and I am watching Missy sleep, she is exhausted. Her MS has been flaring up, and this visit to the hospital was supposed to be a short one.

    I look at her and wonder who will speak for her…

    ___________________________________

    About the Author: Barbara Taylor Vaughan is 90 and in the beginning stages of Alzheimer's. She started a Facebook page to help chronicle her illness and put a face on Alzheimer's. Barbara hopes educating others will inspire them to volunteer to help ease the suffering of those with the disease, families, caregivers. Her relationship with her daughter and caregiver, Missy, and her compassion and humor are inspirational. You can subscribe to her on Facebook where she has opened her page to offering advice to your questions about life and living with Alzheimer's "from a little old lady."

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  • More from A Patient’s Perspective

    Alzheimer's in the First Person
    by Barbara Taylor Vaughan and Melissa Vaughan

    Lymphoblaster
    by Brandi Chase
     

    The Tales of a Stroke Patient
    by Joyce Hoffman

  • Alzheimer’s in the First Person

    Barbara Taylor Vaughan is 90 and in the early stages of Alzheimer's. Barbara and Melissa Vaughan are putting a face on the disease by chronicling Barbara's illness. Melissa, living with Multiple Sclerosis, is Barbara's daughter and caregiver.

    They hope educating others will inspire them to volunteer to help ease the suffering of those with the disease, thier families and caregivers. Barbara and Melissa's relationship, compassion and humor are inspirational.

    We love them and thank them for their humanity and generosity of spirit.

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